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Welcome to our EU site

One in a million but not alone

Chordoma is diagnosed in around 600 people in Europe each year. Navigating this rare disease can be challenging, but support is available across borders. With our Doctor Directory connecting you to local chordoma experts and many other valuable resources, you’re never alone in your journey. The Chordoma Foundation is committed to partnering with patients and families to invest in and conduct research and clinical trials that are making better outcomes possible. No matter where you are, we’re here to support you every step of the way.

Connect with our supportive community

Support from someone who understands your journey can be life-changing. Fortunately, the chordoma community is filled with people who are willing to share their stories, offer a listening ear, and guide you along the way.

Chordoma Connections

Our online community where people affected by chordoma can come together to learn, share, and support each other.

Ambassadors

Our volunteer Ambassadors assist chordoma patients and families in connecting with local resources — and with one another.

Support Groups

We offer virtual and in-person opportunities to learn from experts and connect with others affected by chordoma.
Investing in chordoma research

Our path to progress

A solution for chordoma can only be found by investing in promising research projects at institutions around the world. We and our donors are currently funding seven projects in Europe, each contributing an important piece of the puzzle. As more pieces come together, our understanding of chordoma deepens, bringing us closer to cures.

START HERE

Newly diagnosed? We are here to help.

Navigating a chordoma diagnosis can be overwhelming, but you don’t have to face it alone. Our Patient Navigators provide professional, personalized guidance and support at every stage of your journey with chordoma. This free, confidential service is designed to help you make informed decisions, connect with resources, and cope with the challenges that come with chordoma.

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People diagnosed in Europe each year
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Chordoma-relevant trials in Europe
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European doctors in our Doctor Directory
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Active research studies supported by CF in Europe

Make a lasting impact: Become a Perseverance Pledge donor today!

By making a recurring donation, also known as a Perseverance Pledge, you will accelerate the development of new chordoma treatments and help patients get the best care possible today. Any amount, given regularly, adds up to a significant impact over time.

We have tax-deductible donation mechanisms in Germany, Italy, Netherlands, Spain, and the United Kingdom. Reach out to us with questions.

“As a chordoma patient, I know how challenging this disease is. I believe resilience and determination are key to overcoming every obstacle. That’s why I support the Chordoma Foundation, so research can bring us closer to cures. Every discovery is a victory for all of us who fight this battle daily and for those who will in the future. Together, with hope and tenacity, we can defeat chordoma.”

Fabio Ricci, Perseverance Pledge donor from Italy

Latest news & research updates

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