Welcome to our EU site
One in a million but not alone
Chordoma is diagnosed in around 600 people in Europe each year. Navigating this rare disease can be challenging, but support is available across borders. With our Doctor Directory connecting you to local chordoma experts and many other valuable resources, you’re never alone in your journey. The Chordoma Foundation is committed to partnering with patients and families to invest in and conduct research and clinical trials that are making better outcomes possible. No matter where you are, we’re here to support you every step of the way.
Connect with our supportive community
Support from someone who understands your journey can be life-changing. Fortunately, the chordoma community is filled with people who are willing to share their stories, offer a listening ear, and guide you along the way.
Investing in chordoma research
Our path to progress
A solution for chordoma can only be found by investing in promising research projects at institutions around the world. We and our donors are currently funding seven projects in Europe, each contributing an important piece of the puzzle. As more pieces come together, our understanding of chordoma deepens, bringing us closer to cures.
START HERE
Newly diagnosed? We are here to help.
Navigating a chordoma diagnosis can be overwhelming, but you don’t have to face it alone. Our Patient Navigators provide professional, personalized guidance and support at every stage of your journey with chordoma. This free, confidential service is designed to help you make informed decisions, connect with resources, and cope with the challenges that come with chordoma.
Make a lasting impact: Become a Perseverance Pledge donor today!
By making a recurring donation, also known as a Perseverance Pledge, you will accelerate the development of new chordoma treatments and help patients get the best care possible today. Any amount, given regularly, adds up to a significant impact over time.
We have tax-deductible donation mechanisms in Germany, Italy, Netherlands, Spain, and the United Kingdom. Reach out to us with questions.
